Vsi avtorji so enakovredno prispevali k nastanku članka. / All authors have contributed equaly to the development of the article.
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Citirajte kot / Cite as:
Zupanc Terglav, B., Selak, Š., Vrdelja, M., Kaučič, M. B. & Gabrovec, B., 2019. Zadovoljstvo državljanov Republike Slovenije z zdravstvenimi storitvami v Sloveniji. Obzornik zdravstvene nege, 53(2), pp. 112−118. https://doi.org/10.14528/snr.2019.53.2.318
https://doi.org/10.14528/snr.2019.53.2.311
2019. Obzornik zdravstvene nege, 53(2), pp. 119–127.
IZVLEČEK
Uvod: Veliko otrok z bronhopulmonalno displazijo potrebuje dolgotrajno zdravljenje s kisikom, nekateri pa tudi zdravljenje s kisikom v domačem okolju. Namen raziskave je bil preučiti izkušnje staršev s pripravo na zdravljenje s kisikom po odpustu otroka v domače okolje in poznejšo podporo.
Metode: Uporabljen je bil kvantitativen pristop raziskovanja. Za merski instrument je bil uporabljen delno strukturiran vprašalnik, oblikovan na osnovi pregleda literature. Sodelovalo je 43 staršev otrok, ki so se zdravili s kisikom na domu od januarja 2014 do julija 2016.
Rezultati: Rezultati so pokazali, da se je četrtina (25,6 %) staršev težko sprijaznila z odpustom otroka, ki je potreboval zdravljenje s kisikom v domačem okolju, 18,6 % je dejstvo sprejelo brez težav. Največ informacij o zdravljenju s kisikom na domu in tehničnih informacij so vsi anketirani starši pridobili v času zdravljenja otroka na Enoti za intenzivno nego in terapijo novorojencev. Anketirani starši, ki živijo v predmestju, bolj izražajo strah glede nezaupanja v svoje sposobnosti (t = 5,74, p = 0,006) kot tudi strah pred kronično boleznijo otroka (t = 4,82, p = 0,013).
Diskusija in zaključek: Z raziskavo je bilo ugotovljeno, da so starši dobro pripravljeni na odpust otroka iz bolnišnice v domače okolje, vendar se situacija spremeni, ko so z otrokom sami doma oziroma se mu spremeni zdravstveno stanje. Z dobro zdravstveno vzgojo in podporo se lahko staršem otrok, ki se zdravijo s kisikom na domu, bistveno olajša skrb za njihovega otroka.
ABSTRACT
Introduction: Many children with bronchopulmonary dysplasia need prolonged oxygen treatment and some need further treatment with oxygen in the home environment. The purpose of the study was to present parents' experiences related to the preparation for oxygen treatment after a child has been discharged from hospital into a home environment and subsequent support.
Methods: A quantitative research approach was used. The measuring instrument was a partially structured questionnaire, based on literature review. The study included 43 parents who took care of their children with oxygen at home from January 2014 to July 2016.
Results: The study found that a quarter (25.6%) of parents had difficulties facing that their child had been dismissed from the hospital but needed further oxygen treatment at home. 18.6% of parents had no trouble accepting it. All the interviewed parents gained the majority of information related to oxygen treatment at home and information of technical nature during hospitalization of their child at the Neonatal intensive care unit. The respondents that live in the suburbs reported more mistrust in their own abilities (t = 5.74, p = 0.006) as well as greater fear of the chronical illness their child suffers from (t = 4.82, p = 0.013). On the other hand, the respondents living in the countryside reported less fear.
Discussion and conclusion: The study has found that parents are well prepared for the discharge of their child from the hospital, but the situation changes when they are at home and when their child's health condition changes. Good health care education and support is of great importance for the parents' confidence while they are taking care of their children with supplemental oxygen treatement at home.
Ključne besede:
brunhopulmonalna displazija;
zdravljenje s kisikom; domača oskrba; patronažna medicinska sestra; zdravstvena vzgoja Key words: bronchopulmonary dysplasia; oxygen therapy;
home care; community nurse;
health education Marija Korelc, dipl. m. s.;
Univerzitetni klinični center Ljubljana, Zaloška cesta 7, 1000 Ljubljana, Slovenija
Kontaktni e-naslov / Correspondence e-mail:
korelc.mimi@gmail.com viš. pred. mag. Jožica Ramšak Pajk, viš. med. ses., prof.
zdr. vzg.; Zdravstveni dom Ljubljana Bežigrad, Kržičeva 10, 1000 Ljubljana, Slovenija, in Fakulteta za zdravstvo Angele Boškin, Spodnji Plavž 3, 4270 Jesenice, Slovenija
Izvirni znanstveni članek / Original scientific article